A family who live in Whitley, Reading, were delighted when their application was approved for a travel pod for their 6 year old son.
Ubaydah Amenouche who is physically disabled was born with a genetic disorder called 17q22deletion. The condition has resulted in him having global delay, profound learning difficulties, scoliosis, severe autism and double incontinence. Due to his special needs Ubaydah requires one to one care along with special equipment on a day to day basis.
Since being born the family have been unable to go on holiday or have any vital respite as Ubaydah requires a specialised bed to sleep in at all times, which also impacts Ubaydah’s younger brother. Angelina, Ubaydah’s mother, had applied to other charities and the Occupational therapy team in Reading, but all were unable to assist with her plight. Upon finding out about us, the John Sykes Foundation, from Reading Borough Council she applied to the charity and her application was accepted within a week, and four weeks later they took delivery of the specialised travel pod, just in time for Ubaydah and his Father, Youcef to visit his Grandmother.
Ubaydah’s mother said “I cannot really express my gratitude in words to this charity for how easy the application process was compared to other charities to how fast the response was and how quickly they followed through with the grant for the special needs travel bed for our son.
Usually applying to charities is a long process and a mound of paperwork so it was so refreshing to see such a different approach and quick, positive response.
The grant is quite simply life changing as we can now consider future family holidays and even respite options from family which was simply not possible before due to our son’s complex needs.”
Our founder, John Sykes, commented “Ubaydah’s particular case really touched us and the trustees’ decision to help was unanimous. Our foundation works quietly in the background to help where others cannot and this is a wonderful example of helping someone in need within our great town of Reading. I am hugely passionate about Reading and what makes me most proud is delivering on our charitable purpose, giving someone a chance to work towards a great achievement, or simply taking a helping hand. In particular helping those who do not shout the loudest and making a difference in their life means making a world of difference to me.”